Skip to main content

Down's Heart Group

Down's Heart Group is a charity offering support and information relating to heart conditions associated with Down's Syndrome.

We offer specialised help to parents and professionals, including:

  • one to one support
  • telephone helpline

The Group website aims to provide non-medical people in the UK with good quality information about the heart conditions associated with Down’s Syndrome and other related topics. All our information publications have been written by Down's Heart Group from a parent's perspective and as well as being evidence based, ALL items of a medical nature have been checked for accuracy by professionals in the appropriate medical field.

We review Down’s Syndrome, congenital heart disease and other related websites when producing our publications, (links to many of these can be found in the ‘Links’ directory included on this website), but UK sites are the primary source of evidence as we know that there are some differences in practice and treatment in other countries. Despite this, people from outside the UK may also find Down’s Heart Group a useful resource.

As we review and update our existing publications or add new ones, we will include a list of reference sources used for each publication on Reference Sources, for your information.

Who to contact

Contact Position
Information Team
Down's Heart Group

Where to go

Down's Heart Group
PO Box 4260

Time / Date Details

When is it on
Our phone system will try to connect you with a member of our team, if no-one is available, please leave us a message and we will get back to you as soon as possible.
Time of day

Other Details


Referral required
Referral Details

Anyone can refer - professional or self referral.

Other notes

Support around the heart problems associated with Down's Syndrome.  Ante-natal, at birth, through life and bereavement support and information.